Pulmonary Hypertension (PH) is a chronic, progressive, life threatening disease that requires multidisciplinary expert care. To facilitate this expert, multidisciplinary care, the PH association established a network of pulmonary hypertension care centers (PHCC) with special expertise in pulmonary hypertension (PH), particularly pulmonary arterial hypertension (PAH), to raise the overall quality of care and outcomes in patients with this life-threatening disease across the United States (US). Since the inception of PHCC in September 2014, till date thirty-five centers have been accredited in the US.
This model of care brings together physicians and specialists from other disciplines to provide care, facilitate basic and clinical research, and educate the next generation of providers. PHCC also offers additional opportunities for improvements in PH care. The Patient registry offered through the PHCC is an organized system to collect data to evaluate the outcomes of patients with PH. These registries help in detecting variations in the outcomes across centers, thus, identifying opportunities for improvement. Multiple tactics were undertaken to implement the strategic plan, training and tools throughout the PH care center network. In addition, strategies to foster collaboration between care center staff and individuals with PH and their families are cornerstone of PHCC. The Pulmonary Vascular Network of the American College of Chest Physicians feels that this is a positive step that will improve the quality of care delivered to patients with PH in the Unites States.