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Diffuse Lung Disease: Evaluation and Treatment of ILD |

Using Health Social Network Sourced Data to Characterize Idiopathic Pulmonary Fibrosis Patients

Nadine Drees, MS; York Z öllner, PhD; Dorothee Bartels, PhD
Author and Funding Information

Boehringer Ingelheim GmbH, Ingelheim, Germany


Copyright 2016, American College of Chest Physicians. All Rights Reserved.


Chest. 2016;150(4_S):481A. doi:10.1016/j.chest.2016.08.495
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SESSION TITLE: Evaluation and Treatment of ILD

SESSION TYPE: Original Investigation Poster

PRESENTED ON: Wednesday, October 26, 2016 at 01:30 PM - 02:30 PM

PURPOSE: PatientsLikeMe® (PLM) holds one of the largest global online communities for idiopathic pulmonary fibrosis (IPF), with 1925 patients in April 2014. Within this health social network, patients share their disease experiences through structured surveys or unstructured forums. The suitability of these IPF data as source for research has not been extensively evaluated. The objectives were to evaluate baseline characteristics of the PLM IPF cohort, and to assess if and how this population differs from IPF populations described in observational studies.

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