SESSION TITLE: Evaluation and Treatment of ILD
SESSION TYPE: Original Investigation Poster
PRESENTED ON: Wednesday, October 26, 2016 at 01:30 PM - 02:30 PM
PURPOSE: PatientsLikeMe® (PLM) holds one of the largest global online communities for idiopathic pulmonary fibrosis (IPF), with 1925 patients in April 2014. Within this health social network, patients share their disease experiences through structured surveys or unstructured forums. The suitability of these IPF data as source for research has not been extensively evaluated. The objectives were to evaluate baseline characteristics of the PLM IPF cohort, and to assess if and how this population differs from IPF populations described in observational studies.