RESULTS: Shortness of breath (77%) and cough (53%) were the most common early symptoms in ILD patients as well as 38% reporting fatigue. 25% of respondents saw their primary care physician once before being referred to a specialist, however 61% of respondents saw their primary care physician >2 times before referral to a pulmonologist. IPF was the most common diagnosis reported by 47% of respondents. An accurate diagnosis was achieved after a median of 7 months and after a median of 3 physician visits. Fourteen percent of respondents saw more than 6 physicians before receiving a correct diagnosis. For 28% of respondents the diagnostic process took over 2 years. Misdiagnosis occurred in 56% of respondents. The median time from symptom onset to correct diagnosis in these patients was 11 months, however 49% of respondents carried an incorrect diagnosis for 1 to 10 years. Thirty-eight percent were misdiagnosed more than twice, most frequently with asthma, pneumonia, bronchitis, and allergies. Diagnostic testing was common and often repeated. Sixty-one percent underwent invasive procedures (bronchoscopy or surgical lung biopsy), 45% of respondents had a surgical lung biopsy alone and 21% endured both procedures. Sixty-four percent of respondents acknowledged experiencing stress due to a lack of understanding about their disease, with 51% believing that their symptoms were associated with aging. Seventy-three percent of respondents felt isolated because friends and family were not familiar with ILD or IPF. This was compounded by time away from families, friends and personal life related to the diagnostic odyssey experienced by 84% of respondents.