To present how the use of teaching programs can contribute to standardizing the care of ventilator-assisted individuals (VAI’s) across hospitals, rehabilitation centers and regions to which VAI’s return once discharged home. The National Program for Home Ventilatory Assistance (NPHVA) is a university-based program responsible for providing respiratory equipment and related homecare services to an adult and pediatric population requiring long-term mechanical ventilation. Diagnoses include neuromuscular diseases, Ondine’s syndrome, amyotrophic lateral sclerosis and high spinal cord injury. The NPHVA provides services to all regions of Quebec over a vast demographic area. In an effort to provide VAI’s with the same care across all regions, the NPHVA developed teaching programs covering topics related to each VAI’s illness, treatments and equipment. These programs are used in the training of patients, families, health care partners and frontline community health workers involved in the care of the patient at home. Binders personalized to each VAI’s needs are provided.
We analyzed patient/family satisfaction surveys and other quality indicators to identify key elements contributing to the success of the NPHVA in providing homecare services to VAI’s in urban and rural regions of Quebec.
Three key elements were identified: 1) Teaching/training provided to the patient/family and frontline community health workers; 2) Regular home visits; 3) Timely exchange of information between the program’s clinical specialists and frontline community health workers providing care to the patient in their region.
The use of teaching programs contributes to an open exchange between all health care partners involved in the care of VAI’s and can contribute to improving the continuity of care and the quality of life of this patient population.
The training and dissemination of information to frontline health care workers in conjunction with continuous exchange of clinical and technical information between university-based centers of expertise and community workers may prevent needless hospitalizations of VAI’s due to lack of knowledge and training in home ventilator management and associated therapies.
Rita Troini, None.