0
Abstract: Slide Presentations |

UNDERSTANDING THE EXPERIENCE OF INFORMAL CAREGIVING IN ADVANCED CHRONIC OBSTRUCTIVE PULMONARY DISEASE (COPD): A QUALITATIVE STUDY FREE TO VIEW

Catherine Simpson, *; Joanne Young; Julia Wildish; Graeme M. Rocker
Author and Funding Information

Dalhousie University, Halifax, NS, Canada


Chest


Chest. 2009;136(4_MeetingAbstracts):53S. doi:10.1378/chest.136.4_MeetingAbstracts.53S-e
Text Size: A A A
Published online

Abstract

PURPOSE:  COPD is the 4th leading cause of death in Canada. Symptoms in later stages can be incapacitating. While COPD patients report concerns about being burdensome to their families, how informal caregivers actually experience this role is unclear. The purposes of this study were to increase understanding of informal caregiver experience in advanced COPD, and to identify potential interventions to enhance this experience.

METHODS:  We used interpretive description, a qualitative, grounded approach developed to inform clinical practice related to the phenomenon of interest. We conducted hour-long, one-on-one semi-structured interviews with a purposive sample of 14 COPD caregivers in the Extramural Program, Region 2, New Brunswick, Canada. Interviews were taped, transcribed verbatim, coded conceptually, and analyzed using a constant comparison, iterative method to identify themes emerging within and across interviews.

RESULTS:  Most caregivers, even those feeling overwhelmed, would not choose “burden” to describe their experience. They describe their sense of fear, isolation, need for respite, hyper-vigilance, changes in roles, relationships, self-understanding, and coping by taking it “a day at a time.” Many highlight the importance of their spiritual/religious resources. Cumulative losses, including loss of control as perceived by both patients and their caregivers are central to the experience.

CONCLUSION:  Many of their stories illustrate the dynamic of control/powerlessness existent and influential on many different levels of their day-to-day experience. Many of these themes seem rooted in the cumulative and anticipatory losses that are part of the COPD trajectory.

CLINICAL IMPLICATIONS:  We should acknowledge the substantial, significant losses these caregivers experience in order to develop more appropriate support for their coping efforts and enhance their capacity for resilience through expanded models of care. This support would include enabling periodic respite for those in need.

DISCLOSURE:  Catherine Simpson, No Financial Disclosure Information; No Product/Research Disclosure Information

Wednesday, November 4, 2009

10:30 AM - 12:00 PM


Figures

Tables

References

NOTE:
Citing articles are presented as examples only. In non-demo SCM6 implementation, integration with CrossRef’s "Cited By" API will populate this tab (http://www.crossref.org/citedby.html).

Some tools below are only available to our subscribers or users with an online account.

Related Content

Customize your page view by dragging & repositioning the boxes below.

CHEST Journal Articles
PubMed Articles
  • CHEST Journal
    Print ISSN: 0012-3692
    Online ISSN: 1931-3543