Redline, S (1991) The epidemiology of COPD. Cherniack, NS eds.Chronic obstructive pulmonary disease,225-234 WB Saunders. Philadelphia, PA:
Statistics Canada. Health reports: causes of death, 1990. 1992; 4(1):88–89.
Statistics Canada. Health reports: hospital morbidity, 1989–90. 1992; 4(1):32–33.
United States Public Health Service... The health consequences of smoking: chronic obstructive lung disease—a report of the Surgeon General. 1984; US Government Printing Office. Rockville, MD:.
Sherman, CB, Osmanski, JP, Hudson, LD Acute exacerbations in COPD patients. Cherniack, NS eds.Chronic obstructive pulmonary disease1991,443-456 WB Saunders. Philadelphia, PA:
Georgopoulos, D, Anthonisen, NR Symptoms and signs of COPD. Cherniack, NS eds.Chronic obstructive pulmonary disease1991,357-363 WB Saunders. Philadelphia, PA:
Marini, JJ Ventilatory management of COPD. Cherniack, NS eds.Chronic obstructive pulmonary disease1991,495-507 WB Saunders. Philadelphia, PA:
Make, B COPD: management and rehabilitation.Am Fam Physician1991;43,1315-1324. [PubMed]
Menzies, R, Gibbons, W, Goldberg, P Determinants of weaning and survival among patients with COPD who require mechanical ventilation for acute respiratory failure.Chest1989;95,398-405. [PubMed] [CrossRef]
Nava, S, Rubini, F, Zanotti, E, et al Survival and prediction of successful ventilator weaning in COPD patients requiring mechanical ventilation for more than 21 days.Eur Respir J1994;7,1645-1652. [PubMed]
Hughes, TE, Larson, LN Patient involvement in health care: a procedural justice viewpoint.Med Care1991;29,297-303. [PubMed]
Rogers, RM, Weiler, C, Ruppenthal, B Impact of the respiratory intensive care unit on survival of patients with acute respiratory failure.Chest1972;62,94-97. [PubMed]
Rieves, RD, Bass, D, Carter, RR, et al Severe COPD and acute respiratory failure: correlates for survival at the time of tracheal intubation.Chest1993;104,854-860. [PubMed]
Logan, J, Jenny, J A qualitative analysis of patients’ work during mechanical ventilation and weaning.Heart Lung1997;26,140-147. [PubMed]
Degner, LF, Sloan, JA Decision making during serious illness: what role do patients really want to play?J Clin Epidemiol1992;45,941-950. [PubMed]
Sprangers, MA, Aaronson, NK The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease: a review.J Clin Epidemiol1992;45,743-760. [PubMed]
Younger, SJ, Murphy, DJ, Lynn, J Decision making in support: sentinel decisions.J Clin Epidemiol1990;43,67S-71S. [PubMed]
Pearlman, RA, Jonsen, A The use of quality-of-life considerations in medical decision making.J Am Geriatr Soc1985;33,344-352. [PubMed]
Deber, RB Physicians in health care management: 7. The patient-physician partnership; changing roles and the desire for information.CMAJ1994;151,171-176. [PubMed]
Noseworthy, TW, Knonopad, E Ethical issues in the intensive care unit.Med N Am1990;3,316-320
Dubler, N, Nimmos, D. Ethics on call: taking charge of life-and-death choices in today’s health care system. 1993; Vintage Books. New York, NY:.
Schneiderman, LJ, Kaplan, RM, Pearlman, RA, et al Do physicians’ own preferences for life-sustaining treatment influence their perceptions of patients’ preferences?J Clin Ethics1993;4,28-33. [PubMed]
Seckler, AB, Meier, DE, Mulvihill, M, et al Substituted judgement: how accurate are proxy predictions?Ann Intern Med1991;115,92-98. [PubMed]
Sullivan, KE, Hebert, PC, Logan, J, et al What do physicians tell patients with end-stage COPD about intubation and mechanical ventilation?Chest1996;109,258-264. [PubMed]
Tesch, R. Qualitative research analysis: types and software tools. 1990; Falmer Press. Bristol, UK:.
Miles, MB, Huberman, AM. Qualitative data analysis: a sourcebook of new methods. 1984; Sage. Beverly Hills, CA:.
Clarke, T The Mini Mental-State examination.Can J CME1996;8,79-84
Medical Research Council, Committee on the Aetiology of Chronic Bronchitis. Standardized questionnaire on respiratory symptoms. Br Med J.
2 ,.:1665. [PubMed]
Stewart, AL, Hays, RD, Ware, JE The MOS short form general health survey: reliability and validity in a patient population.Med Care1988;26,724-735. [PubMed]
O’Connor, A Validation of a decisional conflict scale for patients.Med Decis Making1995;15(1),25-30
Singer, P The University of Toronto Center for Bioethics Living Will. Hum Med. 1993;;9 ,.:263
Uhlmann, RF, Pearlman, RA, Cain, KC Physicians’ and spouses’ predictions of elderly patients’ resuscitation preferences.J Gerontol1988;43,M115-M121. [PubMed]
O’Connor, AM, Boyd, NF, Warde, P, et al Eliciting preferences for alternative drug therapies in oncology: influence of treatment outcome description, elicitation technique and treatment experience on preferences.J Chronic Dis1987;40,811-818. [PubMed]
Llewellyn-Thomas, HA, McGreal, MJ, Thiel, EC, et al Patients’ willingness to enter clinical trials: measuring the association with perceived benefit and decision making preference.Soc Sci Med1991;32,35-42. [PubMed]
Llewellyn-Thomas, HA, Thiel, EC, Clark, RM Patients versus surrogates: whose opinion counts on ethics review panels?Clin Res1989;37,501-505. [PubMed]
Palda, VA, Llewellyn-Thomas, HA, MacKersie, RG, et al Breast cancer patients’ perceptions of the effectiveness of radiation therapy [abstract]. Med Decis Making. 1994;;14 ,.:438
Brundage, MD, Davidson, JR, Mackillop, WJ Trading treatment toxicity for survival in locally and advanced non-small cell lung cancer.J Clin Oncol1997;15,330-340. [PubMed]
Brundage, MB, Davidson, JR, Mackillop, WJ, et al Using a treatment trade-off method to elicit preferences for the treatment of locally advanced non-small cell lung cancer.Med Decis Making1998;18(3),256-267
Percy, ME, Llewellyn-Thomas, HA Assessing preferences about the DNR order: does it depend on how you ask?Med Decis Making1995;15,209-216. [PubMed]
Llewellyn-Thomas, HA, Paterson, JM, Carter, JA, et al Cholesterol-lowering medication in primary prevention: do patients “demand” realistic risk reduction [abstract]? Med Decis Making. 1994;;14 ,.:436
Llewellyn-Thomas, HA, Carter, JA, Paterson, JM, et al Antihypertensive medication for primary prevention: are patients’ risk reduction requirements realistic [abstract]? Med Decis Making. 1995;;15 ,.:431
Robinson, EJ, Whitfield, MJ Improving the efficiency of patients’ comprehension monitoring; a way of increasing patients’ participation in general practice consultations.Soc Sci Med1985;21,915-919. [PubMed]
Ellis, DA, Hopkin, JM, Leitch, AG, et al ‘Doctors’ orders’: controlled trial of supplementary, written information for patients. Br Med J.
1 ,.:456. [PubMed]
Haynes, R, Taylor, D, Sackett, D. Compliance in health care. 1979; John Hopkins University Press. Baltimore, MD:.
Padilla, GV, Grant, MM, Rains, BL, et al Distress reduction and the effects of preparatory teaching films and patient control.Res Nurs Health1981;4,375-387. [PubMed]
Watkins, LO, Weaver, L, Odegaard, V Preparation for cardiac catheterization: tailoring the content of instruction to coping style.Heart Lung1986;15,382-389. [PubMed]
Bandura, A Self-efficacy mechanism in human agency. Am Psychol. 1982;;37 ,.:147
Morris, J, Royle, GT Offering patients a choice of surgery for early breast cancer: a reduction in anxiety and depression in patients and their husbands.Soc Sci Med1988;26,583-585. [PubMed]
Johnson, JE, Fuller, SS, Endross, MP, et al Altering patients’ responses to surgery: an extension and replication.Res Nurs Health1978;1,111-121. [PubMed]
O’Connor, AM, Pennie, RA, Dales, RE Framing effects on expectations, decisions and side effects experiences: the case of influenza immunization.J Clin Epidemiol1996;49,1271-1276. [PubMed]
Kasper, JF, Mulley, AG, Wennberg, JE Developing shared decision-making programs to improve the quality of health care.QRB Qual Rev Bull1992;18,183-190. [PubMed]
Rothert, ML, Holmes-Rovner, M, Rovner, D, et al An educational intervention as decision support for menopausal women.Res Nurse Health1997;20,377-387
Levine, NM, Gafni, A, Markham, B, et al A bedside decision instrument to elicit a patient’s preference concerning adjuvant chemotherapy for breast cancer.Ann Intern Med1992;177,53-58
Llewellyn-Thomas, H, Sutherland, HJ, Tibshirani, R, et al Describing health states: methodologic issues in obtaining values for health states.Med Care1984;22,543-552. [PubMed]
O’Connor, A A decision aid for women considering hormone replacement therapy after menopause: decision support framework and evaluation.Patient Educ Couns1998;33,267-279. [PubMed]
O’Connor, AM Validation of a decisional conflict scale.Med Decis Making1995;15,25-30. [PubMed]
Giles, WH, Anda, RF, Casper, ML, et al Race and sex differences in rates of invasive cardiac procedures in US hospitals: data from the National Hospital Discharge Survey.Arch Intern Med1995;155,318-324. [PubMed]
Ayanian, JZ, Udvarhelyi, IS, Jatsonis, CA, et al Radical differences in the use of revascularization procedures after coronary angiography.JAMA1993;269,2642-2646. [PubMed]
Wenneker, MB, Epstein, AM Racial inequalities in the use of procedures for patients with ischemic heart disease in Massachusetts.JAMA1989;261,253-257. [PubMed]
Dempsey, SJ, Dracup, K, Moser, DK Women’s decision to seek care for symptoms of acute myocardial infarction.Heart Lung1995;24,444-456. [PubMed]
Young, R The household context for women’s health care decisions: impacts of UK policy changes.Soc Sci Med1996;42,949-963. [PubMed]
Robison, J, Moen, P, Dempster-McClain, D Women’s caregiving: changing profiles and pathways.J Gerontol B Psychol Sci Soc Sci1995;50,S362-S373. [PubMed]
Ruhm, CJ Gender differences in employment behavior during late middle age.J Gerontol B Psychol Sci Soc Sci1996;51,S11-S17. [PubMed]
Bilodeau, BA, Degner, LF Information needs, sources of information, and decisional roles in women with breast cancer.Oncol Nurs Forum1996;23,691-696. [PubMed]
Williams, SJ Chronic respiratory illness and disability: a critical review of the psychosocial literature.Soc Sci Med1989;28,791-803. [PubMed]
Uhlmann, RF, Pearlman, RA Perceived quality of life and preferences for life-sustaining treatment in older adults.Arch Intern Med1991;151,495-497. [PubMed]
Brock, DW, Wartman, SA When competent patients make irrational choices.N Engl J Med1990;322,1595-1599. [PubMed]
Haas, JS, Weissman, JS, Clearly, PD, et al Discussion of preferences for life-sustaining care by persons with AIDS.Arch Intern Med1993;153,1241-1248. [PubMed]
Dannis, M, Mutran, E, Garrett, GM, et al A prospective study of the impact of patient preference on life-sustaining treatment and hospital cost.Crit Care Med1996;24,1811-1817. [PubMed]
A controlled trial to improve care for seriously ill hospitalized patients: the study to understand prognosis and preferences for outcomes and risks of treatments (SUPPORT)—the SUPPORT Principal Investigators. JAMA 1995; 274:1591–1598.